In the role of parenthood it is easy to get caught up in all of life's day-to-day responsibilities and demands time and stresses of work, mortgage repayments, demands of looking after a household, and so on. While a child is quietly sitting watching TV or playing a computer game, it is easy to take the opportunity to get on with the chores that have to be done, like washing the dishes, sweeping the floor, mowing the lawn, or finishing off a brought-home work project on the laptop . . . and thus miss having quality time with your child.
Opposite another passenger or deal with people pushing past him. Such things make him feel sick and shake and panic to such an extent, he usually rushes off and locks himself in the toilet. On the journey down, I had to first go on a search at the station, to see if I could find a pair of scissors as he had a label in his new shirt. I then had to virtually climb on his back and try to cut it out without him removing the shirt an odd looking sight I am sure - but needs must After the trauma of all the sensory upset this label caused him, I guess he was in no fit state to march up and down the train, trying to find a seat - a task that is far more difficult for us because Luke is very particular about where he sits, always at a table and always by a window - not easy to find on a busy train. It all finally got too much for him and I spent the next half an hour trying to persuade him to come out of the toilet. Eventually looking like someone suffering from a bad bout of food poisoning,...
One concession that Luke's school has made for him is that he now doesn't have to do games. The thought of games was pervading Luke's every waking (and sleeping) thought and making him ill. He loathes games. He despises the confusion, the noise and the hustle and bustle with such a passion that I felt as if I were sentencing him to a spell in the torture chamber each week. It was my job therefore to ensure the teachers understood the severity of his difficulties and also to offer them a viable alternative whilst games were taking place. He now goes into learning support and prints out his work (he uses a laptop), organizes his timetable and does any homework that he may have.
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