Asperger Syndrome in the family

I truly believe that the best way to discover the depths and intricacies of the AS mind is to listen to what an AS person has to say for him- or herself (stating the obvious rather!). It is therefore for that reason (and a little bit of motherly pride) that I have quoted from and mentioned Luke's book Freaks, Geeks and Asperger Syndrome many times already in earlier chapters. Luke gives a valuable insight into how he thinks, feels and views the world and so I am, in the main, going to write about how it is to live with Luke - a perspective from the outside rather than the inside.

Each family with an AS member has their own particular difficulties. Sensory problems, crowds, changes in routine, repetitive behaviours, language difficulties - each plays a role in an AS child's life (and therefore the family's life), though some difficulties merely play a minor part whilst others take the centre stage and demand full and undivided attention. AS weaves its tendrils through the very heart of the whole family, sometimes constricting every member with its vice-like grip, yet at other times embracing the whole family in its uniqueness. As a parent it is our job to keep those tendrils in place whilst untangling any knots that have been intertwined and may be choking the family dynamics.



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